Things I miss

I don’t link to it often but I do have an archive of my old disability blog. It used to have its own domain and everything. I did my best to make sure that old domain and any URLs still work and redirect to this static archive—because cool URIs don’t change. But I don’t link to them much anymore because the posts are old and I am slightly embarrassed by some of them.

But every now and then I poke around in the archives myself and reminisce about times past.

The other day I was reminded of a post I wrote about SMA. I wrote it soon after I discovered I had grown too weak to handle a PlayStation controller and play the new edition of Madden I had just received as a gift. In that post I said:

But SMA took football from me. And it took writing (by making it slow and tedious).[1] It keeps taking and taking. Its hunger is never filled nor its thirst quenched.

I wrote that in 2009. Fifteen years ago. I’ve lost even more abilities since then. Sometimes I think about the things I used to be able to do. Some of them I miss dearly. So in this somewhat downer of a blog post, I thought I would make a list of things that I miss being able to do.

Disclaimer: I told myself I wasn’t going put one of these in here, but what if this is the only blog post of mine that someone sees? I feel I need to mention that I am living a good life. I have fun making things, I have a job doing meaningful work, and I’ve gotten pretty good at adapting to my disability.

Okay, with that out of the way, here we go—in no particular order:

I’m sure there are way more but now that I’ve gotten to this point in the list I haven’t been able to think of anything else for a few minutes. So I guess I’m calling this done.

Let’s pour one out for where we’ve been and turn our attention back to where we’re going.

  1. SMA didn’t take writing away. Through a combination of an optimized onscreen keyboard and a voice input tool, I continue to write blog posts, code, and very bad fiction. ↩︎

  2. This is one of the last times I was able to play music. I was using an iPad mini. I wore a glove so that I could rest my hand on the screen. My elbow sat on an armrest that swivelled, which gave me the range of motion to move my arm around. ↩︎

  3. With my difficulty swallowing, it is too easy for me to get choked up on the husks. ↩︎